Kanu CN, Brown CM, Barner JC, Chapman CJ, Walker HA. Patient activation in inflammatory bowel disease patients. Poster presented at the 2017 ISPOR 22nd Annual International Meeting; May 2017. Boston, MA. [abstract] Value Health. 2017 May; 20(5):A229.


OBJECTIVES: To describe the demographic characteristics of inflammatory bowel disease (IBD) patients in different patient activation stages.

METHODS: A total of 50 adult patients with IBD consented to participate in this prospective study. Convenience sampling was used by the clinic staff in a gastroenterology clinic to select adult IBD patients from medical records who had scheduled office visits from April to August 2016. Selected patients were offered participation in the study. To obtain baseline activation and demographics, patients who agreed were sent an electronic or paper survey consisting of the patient activation (PAM-13) instrument and demographic questions. Responses to the PAM-13 items were converted to a PAM score using the PAM-13 score spreadsheet and the scores were then used to group each patient into one of the four progressive patient activation stages, such that patients in stage 1 generally had no knowledge/skill to manage their health while stage 4 patients were fully active in managing their health. Demographics were analyzed descriptively and compared per activation stage.

RESULTS: The mean age of patients was 48 years (± 18years) and most were Caucasian (88%), female (64%), college graduates (56%), and had Crohn’s disease (59.2%). Half of the patients had an active inflammation and had been diagnosed with IBD for over 5 years. A larger percentage were highly activated with 8%, 14%, 46%, and 32% in stages 1, 2, 3, and 4, respectively. Over 50% of the higher level stage 3 and 4 patients were female, Caucasian, college graduates, and over 40 years old. Demographic and stage comparisons were not significant.

CONCLUSIONS: Patient activation is an indicator of health behavior and health outcomes. Its routine measurement could provide useful information to healthcare providers to guide customized information exchange with individual patients. This could foster greater patient engagement in health management and enhance the patient-provider interaction.

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