Neumann ML, Allen JY, Kakani S, Ladner A, Rauen MH, Weaver MS, Mercer DF. A beautiful struggle: parent-perceived impact of short bowel syndrome on child and family wellbeing. J Pediatr Surg. 2021 Oct 1. doi: 10.1016/j.jpedsurg.2021.09.039
Davidson D, Stevenson M, Llonch MV, Hsieh A, Brown TM, Slota C, Fehnel S. Development of a novel patient-reported outcome measure symptoms and impacts of familial chylomicronemia syndrome. J Clin Lipidol. 2020 Jul;14(4):P571.