Harrington M, Hareendran A, Skalicky A, Wilson H, Clark M, Mikl J. Assessing the impact on caregivers caring for patients with rare pediatric lysosomal storage diseases: development of the Caregiver Impact Questionnaire. J Patient Rep Outcomes. 2019 Jul 23;3(1):44. doi: 10.1186/s41687-019-0140-3
Barrett AM, Clark MJ, DeMuro C, Esser D. Proxy-reported questionnaires for young children with asthma: a structured review. Eur Respir J. 2013 Aug 1;42(2):513-26.
Erickson SR, Munzenberger PJ, Plante M, Kirking DM, Hurwitz M, Vanuya R. Influence of sociodemographics on the health-related quality of life of pediatric patients with asthma. J Asthma. 2002 Apr 1;39(2):107-17.