Neumann ML, Allen JY, Ladner A, Kakani S, Weaver MS, Mercer DF. Exploring the impact of pediatric short bowel syndrome on parent well-being using a disease-specific pilot survey. Nutr Clin Pract. 2024 Feb;39(1):154-67. doi: 10.1002/ncp.11008
Goyal RK, Williams DH, Sansgiry SS, Essien J. Awareness and perceived usefulness of the website designed to facilitate informed health insurance purchase decisions. TPHJ. 2010 Jul;62(3):8-11.
Quittner AL, Sweeny S, Watrous M, Munzenberger P, Bearss K, Gibson NA, Fisher LA, Henry B. Translation and linguistic validation of a disease-specific quality of life measure for cystic fibrosis. J Pediatr Psychol. 2000 Sep 1;25(6):403-14.