Andrews S, Mansfield C, O'Neill C, Peay H. Meaningful treatment outcomes for Sanfilippo syndrome: using a combination of focus groups and best-worst scaling to elicit and explore parents' priorities. Poster presented at the 2019 25th Annual Qualitative Health Research Conference; October 2019. Vancouver, Canada. [abstract] Int J Qual Methods. 2020 Mar 30; 19:2. doi: 10.1177/1609406920909934
Yopp JM, Deal AM, Nakamura ZM, Park EM, Edwards T, Wilson DR, Biesecker B, Rosenstein DL. Psychological and parental functioning of widowed fathers: the first two years. J Fam Psychol. 2019 Aug;33(5):565-74. doi: 10.1037/fam0000528
Bailey DB, Raspa M, Bishop E, Mitra D, Wheeler A, Sacco P. Health and economic consequences of Fragile X syndrome for caregivers. J Dev Behav Pediatr. 2012 Nov 1;33(9):705-12.