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Publications
Paquin RS, Fischer R, Mansfield C , Mange B, Beaverson K, Ganot A, Martin AS, Morris C, Rensch C, Ricotti V, Russo LJ, Sadosky A, Smith EC, Peay H. Priorities when deciding on participation in early-phase gene therapy trials for Duchenne muscular dystrophy: a best–worst scaling experiment in caregivers and adult patients . Orphanet J Rare Dis. 2019 May 9;14(1):102. doi: 10.1186/s13023-019-1069-6
Carrillo N, Huizing M, Leoyklang P, Quintana M, Shrader J, Bradley K, Slota C , Perreault J, Class B, Ciccone C, Parks R, Joe G, Heiss J, Berry S, Malicdan MC, Gahl W. Open-label phase 2 clinical trial of ManNAc for GNE myopathy . Poster presented at the American Academy of Neurology 71st Annual Meeting; May 6, 2019. Philadelphia, PA.
Lewis EF, Coles TM, Lewis S , Nelson LM , Barrett A , DeMuro Romano C , Stull DE, Turner SJ, Chang CG. Development, psychometric evaluation, and initial feasibility assessment of a symptom tracker for use by patients with heart failure (HFaST) . J Patient Rep Outcomes. 2019 May 2;3(1):26. doi: 10.1186/s41687-019-0113-6
Gignac F, Romaguera D, Fernandez-Barres S, Phillipat C, Garcia-Esteban R , Lopez-Vicente M, Vioque J, Fernandez-Somoano A, Tardon A, Iniguez C, Lopez-Espinosa MJ, Garcia de la Hera M, Amiano P, Ibarluzea J, Guxens M, Sunyer J, Julvez J. Maternal nut intake in pregnancy and child neuropsychological development up to 8 years old: a population-based cohort study in Spain . Eur J Epidemiol. 2019 May;34(7):661-73. doi: 10.1007/s10654-019-00521-6
Peay H, Fischer R, Tzeng JP, Hesterlee SE, Morris C, Martin AS, Rensch C, Smith E, Ricotti V, Beaverson K, Wand H, Mansfield C . Gene therapy as a potential therapeutic option for Duchenne muscular dystrophy: a qualitative preference study of patients and parents . PLoS One. 2019 May 1;14(5):e0213649. doi: 10.1371/journal.pone.0213649
Montgomery ET, Beksinska M, Mgodi N, Schwartz J, Weinrib R , Browne EN, Mphili N, Musara P, Jaggernath M, Ju S, Smit J, Chirenje ZM, Doncel GF, van der Straten A. End-user preference for and choice of four vaginally delivered HIV prevention methods among young women in South Africa and Zimbabwe: the Quatro Clinical Crossover Study . J Int AIDS Soc. 2019 May;22(5):e25283. doi: 10.1002/jia2.25283.
Savatt JM, Azzariti DR, Faucett WA, Ledbetter DH, Rangel Miller V, Palen E, Rehm HL, Rhode J, Rogers L, Talbird S , Trutoiu L, Vidal JA, Rooney Riggs E, Lese Martin C. ClinGen's patient data sharing program: leveraging data sharing experience from GenomeConnect to broaden patient data sharing efforts . Poster presented at the 2019 Curating the Clinical Genome Conference; May 2019. Washington, DC.
Millar M, Kinney AY, Camp N, Cannon-Albright L, Hashibe M, Penson D, Kirchhoff A, Neklason D, Gilsenan A , Dieck GS, Stroup AM, Edwards SL, Bateman C, Carter ME, Sweeney C. Predictors of response outcomes for research recruitment through a central cancer registry: evidence from 17 population-based studies . Am J Epidemiol. 2019 May 1;188(5):928-39. doi: 10.1093/aje/kwz011
Forns J , Pottegard A, Reinders T, Poblador-Plou B, Morros R, Brandt L, Cainzos-Achirica M, Hellfritzsch M, Schink T, Prados-Torres A, Giner-Soriano M, Hagg D, Hallas J, Cortes J, Jacquot E, Deltour N, Perez-Gutthann S , Pladevall M , Reutfors J. Antidepressant use in Denmark, Germany, Spain, and Sweden between 2009 and 2014: Incidence and comorbidities of antidepressant initiators . J Affect Disord. 2019 Apr 15;249:242-52. doi: 10.1016/j.jad.2019.02.010
Lytras T, Kogevinas M, Kromhout H, Carsin AE , Anto JM, Bentouhami H, Weyler J, Heinrich J, Nowak D, Urrutia I, Martinez-Moratalla J, Gullon JA, Vega AP, Semjen CR, Pin I, Demoly P, Leynaert B, Villani S, Gislason T, Svanes O, Holm M, Forsberg B, Norback D, Mehta AJ, Probst-Hensch N, Benke G, Jogi R, Toren K, Sigsgaard T, Schlunssen V, Olivieri M, Blanc PD, Watkins J, Bono R, Buist AS, Vermeulen R, Jarvis D, Zock JP. Occupational exposures and incidence of chronic bronchitis and related symptoms over two decades: the European Community Respiratory Health Survey . Occup Environ Med. 2019 Apr;76(4):222-9. doi: 10.1136/oemed-2018-105274